January 2026 Progress Update
This month has been focused on consolidating medical information and planning for the next phase of treatment exploration. I’ve had consultations with two new specialists who brought fresh perspectives on the vascular component of my condition.
Key Developments
The most exciting development is increased clarity around treatment sequencing. We’ve identified a potential pathway that addresses the vascular issues first, which may help improve energy levels for participation in rehabilitation.
Travel has been difficult this month, but remote consultations have made it possible to stay on schedule with care coordination across multiple time zones.
Looking Ahead
Next month’s priority is completing a comprehensive metabolic assessment to better understand the mitochondrial component. This data will be crucial for evaluating the therapeutic approaches we’re considering.
I’m grateful for everyone who has supported this journey so far. Your encouragement makes these difficult conversations with doctors easier to navigate.